The story continues

September 2007

 


Although I would like to write a lot, I'm going to write less in this report. I have reviewed the content of this web page and I think the same thing is happening as when I speak to my father in Germany and I say to him: “Rosa speaks a lot more now” and he answers: “You already told me that last week.” It's true, but I told him again because Rosa does talk more now than a week ago. So for me it was important to mention it again as a big success.

I think the same thing is happening with my reports for this web page. Two years ago I wrote: “ Rosa 's manual ability is improving”, one year ago I wrote it again and it's true, it is continuously improving and it will always be worth it to mention.

But I have been thinking that maybe there is another way to illustrate the importance that the program has for Rosa and the way in which it is profoundly changing her life.

 


I have introduced a timeline to this page and I also fulfilled the promise made in the “Our actual program” section because many people can't imagine what it is we are doing all day.

Our problems:

The constant hyperactivity, although improving daily, is still present. Rosa has difficulty controlling her behavior. Her level of expression is that of a small child, perhaps of a two year old. Her hypersensibility is improving but still causes her problems. Noises can interrupt her in her activities leaving her paralyzed for moments.

Rosa has found many nonverbal ways to communicate (gestures, signs or signals, etc.) but asides from asking for water or food, she still can't make use of words to communicate her needs.

Her walk has not improved much. She can't block the knees although she takes big, firm steps.

 

 



 


Our principal achievements in the last 6 months:

We had an important achievement in the physiological area . Thanks to a diet free of baking powder and starch, and the use of enzymes for a better digestion and reinforcement for her liver, Rosa no longer has abdominal pain and has learned to control her sphincter.

Other big changes were had in the social and language areas . With the TEAS treatment, Rosa was able to diminish her auditory hypersensibility. She is much calmer, no longer has so many uncontrolled movements, can follow instructions almost in the way that other children can. She can control herself much better, is more independent and has some small household chores: turn on the light, take out the trash with help, and close the gate. She also is playing with other children for the first time. She is able to throw a ball, share toys, etc.

 

 

Rosa says many different words spontaneously. She can't do it when we ask her, repeat them or have a chat, but it is evident that Rosa is starting to talk. She says the words more quickly than us and for someone who doesn't know her they are hard to understand. But no one starts out perfectly. It is a great joy because language had been an area with very little advances up till now.



 

In May of this year Rosa participated for the second time in the course “What to do for your child with cerebral lesion” with a demonstration of her advances, given by the Institutes in Aguascalientes México.

We keep having more and more practice with facilitated communication and Rosa is now able to write long texts. She likes to write letters to her grandparents, friends and the staff at the Institutes in Philadelphia . For her web page she wrote a beautiful account this time. I think reading “My birthday”, everyone will realize the profound changes that Rosa is having in her life but also the problems that are still to be overcome.

It was, like the last year, a strong and happy year. I don't want to write more for the moment. I want to give Rosa the word now.

But before, as always, the most difficult: asking you again for your support. We will travel to Philadelphia September 8.

Even the smallest of donations that you can offer is a big help for us, in both an economical and a spiritual way.

Affectionately Elke, Darinel, María and Rosa
September 2007

 


 

TOP

Home